Hello, We are the Nantzes

Hugh, Logan, Big Brother Avery, & Little Sister Hayden. 

Our sweet girl was diagnosed with SMA Type 1 in February 2020 through the Indiana Newborn Screen. We have been overwhelmed by the love and support of the SMA community since our diagnosis. Our hope is to help spread awareness about Spinal Muscular Atrophy and offer support to future families who may find themselves in this unthinkable place. 

​

We also hope to share our journey to help educate others on topics of inclusion and advocacy. It's important that we don't shy away from these topics as we raise Hayden to be proud of who she is, every aspect, including her diagnosis of SMA. 

​

You can also follow along here https://www.instagram.com/here.for.hayden/ 

@here.for.hayden #hereforhayden